Moyamoya Disease Awareness Day is May 6, 2025
May 6 is Moyamoya Disease Awareness Day and Credit Unions Kids at Heart®, its Participating Credit Unions, and Corporate Sponsors have organized advocacy initiatives and observances in local communities.
Moyamoya is a rare and progressive neurological disease in which the blood vessels that supply blood to the brain narrow, restricting blood flow. If left untreated, this dangerous disease can cause life-threatening strokes in children and adults, resulting in long-term, debilitating impairments.
Early diagnosis and treatment are critical. On May 6, 2025, help us educate the public and the medical community about this disease. Wear blue, participate in the events listed below, print out this fact sheet provided by Boston Children's Hospital, global leaders in the study of this disease.
Local Events and Activities
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Digital Billboard: The DCU Center will recognize Moyamoya Day through May 6, 2025, on their digital signage outside of the Center Arena and Convention Center at 50 Foster Street in Worcester, MA.
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Digital Billboard: The IBEW Local 103 union will recognize Moyamoya Day on Tuesday, May 6 on the digital billboard at their headquarters on Freeport Street in Dorchester. The billboard faces the well-trafficked interstate 93.
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Bridge and Municipal Building Lightings: Look for buildings and bridges, including Boston’s tallest standing building, the Prudential Tower, the Zakim and Braga Bridges, bathed in blue on Tuesday, May 6! The Campanile Clock Tower and Union Station, Springfield, will be illuminated for the entire week.
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Boston Children’s Hospital Lights Up in Blue: The main entrance of Boston Children’s Hospital at 300 Longwood Avenue, Boston, will light up in blue and signs of support will greet the medical teams, patients, and their families in the Moyamoya Program facilities on the 6th floor.
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Proclamations: Official proclamations recognizing May 6 as Moyamoya Awareness Day have been made by Massachusetts Governor Maura Healey, Mayors Michelle Wu (Boston), Paul Coogan (Fall River), Greg Verga (Gloucester), Edward A. Bettencourt, Jr. (Peabody), Peter M. Marchetti (Pittsfield), Domenic J. Sarno (Springfield), and other local officials.
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Credit Union Promotions and Fundraising Challenges: Credit Unions Kids at Heart Participating Credit Unions and Corporate Sponsors will raise awareness with their employees, members, and customers in various ways, including, but not limited to, fundraising challenges, sharing educational resources online and on social media, distributing informational flyers, and more.
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98.5 The Sports Hub Radio Spots: Longtime Credit Unions Kids at Heart media partner 98.5 The Sports Hub will run public awareness campaign spots all day.
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Workplace Observances: Businesses throughout Massachusetts, including Credit Unions Kids at Heart Participating Credit Unions and Corporate Sponsors, will recognize the day in various ways, including, but not limited to, fundraising challenges, wearing light blue clothing, sharing educational resources, and more.
Saturday, May 10, 2025 - 9 a.m. to 12 p.m.
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Annual Boston Children's Hospital Moyamoya Disease Symposium: Held virtually, hear about the latest Moyamoya data as well as advances in research from eight expert doctors and specialist in Moyamoya disease. Sessions cover a range of topics from new advances, transition from pediatric to adult care and more. Learn more and register on Eventbrite.
Show your Support
To add your event or observance to our list, or to share your pictures from the day, please contact us at cukidsatheart@eascorp.org.